NSW Brain Injury Rehabilitation Forum US Federal Interagency Conference on TBI
Brain Injury Brain Injury
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Acknowledgements
Module 1 : Introduction to Traumatic Brain Injury Compiled
by: Barbara Strettles Module 2 : Communication Compiled by past and current Module 3 : Promoting Skills for Independence Compiled by Module 4 : Understanding and managing cognitive changes after traumatic brain injury Compiled by: Module 5 : Understanding and managing behaviour changes following a TBI Compiled by: Module 6 : Sexuality after traumatic brain injury: issues and strategies Compiled by: Grahame Simpson PhD Module
7 : Effective Case Management Grahame Simpson Module 8 : Supervising staff who work with a person with a traumatic brain injury Compiled by: Barbara Strettles, Residential Service Manager, Module 9 : Mobility Compiled by: Siobhan Barry
There are many video clips with people with TBI on this site. There are extended stories and experiences of five people with TBI, their families, friends, workers and case managers are at the heart of the video stories and video clips, and content on this site: Jonathan The importance of the contribution of all these people and their willingness to share their experiences so that others might learn to work with people with TBI is acknowledged with deep gratitude by all the people who have worked on this site and associated learning materials.
This project was undertaken by Rebecca Harris, Project Officer, GMTT Brain Injury Rehabilitation Directorate. The members of the Paediatric Reference Group from the GMTT Brain Injury Rehabilitation Directorate are acknowledged for their expertise, advice and contributions to the project. The members included;
Thanks are also given to other individuals who also work within Brain Injury Rehabilitation Services through out NSW. These individuals have all contributed their knowledge to this project:
A special thank you is given to Wendy Moore from the South West Brain Injury Rehabilitation Service, Albury and Robert Parker, Outreach Worker, South West Brain Injury Rehabilitation Service, Albury for their contributions to the information sheets contained within the folder. The professionals within the Brain Injury Services in NSW are acknowledged for their insight, knowledge and participation in providing valuable feedback into the transition process and where improvements are required. Finally, grateful acknowledgement is given to the twelve young people and their parents who participated in the feedback survey. Background In 2004 the New South Wales Greater Metropolitan Transition Taskforce’s Brain Injury Rehabilitation Directorate initiated a project to explore the issues surrounding transition for young people with a brain injury moving from paediatric to adult services. The Paediatric Reference Group, within the Brain Injury Rehabilitation Directorate, had identified that staff at the brain injury units across NSW recognised that transition could be improved for young people and their families. The paediatric reference group wanted to examine how transition was undertaken in the different units throughout NSW, undertake a literature review and gain feedback from staff and young people and their families who had recently undertaken transition. The outcome of this investigation and analysis was to develop a tool to help young people and their families navigate their way through gaining more independence and moving from school and paediatric services to adult services. It was identified that for transition to be successful a young person needs the opportunity to talk through many areas of their life. Areas such as education, training and employment, living skills, recreation and leisure activities, friendships and relationships, living arrangements and financial issues need to be discussed. The tool that was to be developed would have to encompass this wide variety of topics, if it were to assist in making transition more successful for young people with a brain injury. It was considered necessary that the tool had to be youth friendly, easy to read, relevant to young people and also provide some guidance to the young person’s family. It needed to be able to help young people consider the individual areas within their life, work through their goals and gain skills in these areas throughout the transition process and in the years to follow. The tool had to be relevant to all young people throughout NSW, both those that live in the city and in rural areas. An information folder for young people with a brain injury going through transition seemed to fit all these requirements. Hence, the information folder, ‘The Next Step – Transition from Children’s Services to the Adult World’ was developed. The Greater Metropolitan Transition Taskforce has been reconvened as The Greater Metropolitan Clinicians’ Taskforce
The Kit was developed for the Brain Injury Rehabilitation Unit (SWSAHS) by Belinda Shepherd, Occupational Therapist and Barbara Strettles, Residential Services Manager, BIRU (SWSAHS). Funding was provided by the Motor Accident Authority of New South Wales to the Brain Injury Rehabilitation Unit (BIRU) (SWSAHS) for the development of this Kit. People with a brain injury, families and service providers were involved in the development and evaluation of the Kit. People involved in the Kit's development included:
A special thanks to people involved in the Kit's review, who included:
A special thanks to members of the Reference Group for their ongoing support, creativity and direction:
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