11. Services & Organisations

Consumer Organisations

Organisation

Description

Synapse Synapse provides a range of support services for people who have been impacted by brain injury and promotes quality of life, self-determination and choice through information, specialist support and targeted research activities. Synapse mission is to ensure the rights of people impacted by brain injury, by connecting knowledge, policy, services and systems.
Spinal Cord Injuries Australia Spinal Cord Injuries Australia (SCIA) is a not-for-profit organisation working for people with spinal cord injury (SCI). Individuals with SCI and similar disabilities use our community-based services to overcome barriers, achieve their goals and live fulfilling personal, social and professional lives.
Brain Injury Australia Brain Injury Australia (BIA) is the central clearinghouse of information and gateway to nationwide referral for optimising the social and economic participation of all Australians living with brain injury.
Siblings Australia Inc Organisation promoting better support for siblings of children and adults with disability - resources,workshops, research and advocacy.  The target audience is both siblings and parents of chidren with brain injury.
Trapeze Trapeze adopts a whole person integrated care approach, keeping you at the centre of all we do. We offer comprehensive care coordination services that are practical, timely and relevant to your needs. 
Brain Injury Association of America Our Vision Everyone in the U.S. who sustains a brain injury is diagnosed, treated, and accepted. Our Mission To advance awareness, research, treatment, and education and to improve the quality of life for all people affected by brain injury.
Vision Australia Vision Australia is a leading national provider of blindness and low vision services in Australia. We work in partnership with Australians who are blind or have low vision to help them achieve the possibilities they choose in life.
Guide Dogs Guide Dogs NSW/ACT is the leading provider of Guide Dogs and orientation and mobility services that enable people with impaired vision to get around their communities safely and independently.
Cerebral Palsy Cerebral Palsy Alliance provides family-centred therapies, life skills programs, equipment and support for people and their families living with cerebral palsy and other neurological and physical disabilities.
Parachute Canada Parachute, a national Canadian charity founded in 2012, promotes researched, evidence-based and expert-advised resources and tools that can help to prevent serious harm or death from preventable injuries.

 

Knowledge bases

Organisation

Description

My support space Digital and written information resources to build skills and knowledge for supporting people with acquired brain injury.
Cerebral Palsy Alliance Parenting Podcast  Parentwise Podcast Series - This Cerebral Palsy Alliance podcast series offers practical tips for parents on a variety of issues including encouraging positive behaviour and resilience
CanChild CanChild is housed within the School of Rehabilitation Science at McMaster University and is the hub in an academic network of international scientists that conduct applied clinical and health services research concerning children and youth with a variety of developmental conditions
TBI Staff Training - Phone Apps Applications for Android and Apple to support clinical practice across rehabilitation domains.
La Publishing Books written for kids on concussion and brain injury Child audience focussed books for purchase on topics of brain injury and concussion.
Centre for Disabilities studies Training event schedule on topics such as relationships and sexuality workshop
Centre for Community welfare training The Centre for Community Welfare Training's calendar for available professional development online and in person events.
SCHN Kids Health  SCHN site for child health and safety, information via books and fact sheets
Royal childrens Hospital Melbourne Fact sheets on a variety of topics related to paediatric brain injury produced by the Royal Children's Hospital Melbourne.
Raising children  Australian Parenting website with an extensive range of resources and supports
Zero to Three - supporting early brain development   Australian Parenting website with an extensive range of resources and supports
Synapse A parents pack of multiple fact sheets on a range of topics including emerging sexuality, language and living skills, drugs and alcohol plus lots more

 

Health / Govt/ NDIS/ Insruance

Organisation

Description

Agency for Clinical Innnovation Agency for Clinical Innnovation
NSW Education system and children with disabilities NSW education system link which includes information on roles and responsibilities of school staff, personalised learning and support, transition supports, disability standards for education and , adjustments to teaching and learning
SIRA SIRA regulates motor accidents CTP insurance, workers compensation insurance and the home building compensation scheme in NSW
ICARE Insurance and care for the people of nsw
SIRA Synapse fact sheets on a variety of behavioural issues and management approaches.These are not paediatric specific but with clinical discernment will have application to the paediatric population

 

 

 

 

 

Sport / Other

Organisation

Description

Sporting Associations Useful link for finding local relevant sporting associations.
Kids Safe NSW Kid Safe NSW offers a range of information and strategies for keeping kids safe in day day life.