6.1b
Sexuality issues for people with TBI and their family
People with a TBI
often experience changes to their sexuality after the TBI.
There are primary causes (eg injury to the brain) and secondary causes
(eg stress) that bring about these changes.
There is a wide range of change between individuals.
Common changes to sexuality after TBI
Lower
sex drive
Lower sex drive
Up to 41% of men report having a lower level of sex-drive after TBI.
Only 15% report having an increased or greatly increased sex-drive
(Ponsford, 2003). Up to 33% of women reported that they had a lower sex-drive after the injury.
Decreased frequency
Up
to 54% of both men and women report that they had sex less often
than before the injury. There are a number of reasons
for this including relationship breakdown, difficulties starting
new relationships, lower sex-drive.
Changes
in arousal
Up to 30% of men report erectile difficulties after the injury
(Kreuter et al., 1998)
Erectile difficulties vary, with some people able to achieve
only partial erections, or erections in some situations
but not others, and others unable to achieve erections in any
situation. It is not yet known whether environmental
factors (eg. performance anxiety, depression) may be the cause
of these difficulties as often as the brain injury
itself. Up to 18% of women reported lower levels of vaginal lubrication
after the injury (Hibbard et al., 2000)
Orgasmic problems
Up
to 40% of both men and women reported decreased or no experience
of orgasm post-injury (Kreuter et al., 1998)
Disruption
to the menstrual cycle
It
is common for a woman’s period to stop after a brain injury.
It usually starts again after four to six months.
Primary
and secondary causes of change
Primary
causes
The whole
of the Central Nervous System is involved in sexual activities, from
low in the spinal cord up to the most evolved part of the
human brain. The brain is a sexual organ. It has been said that the
brain is the ultimate sexual organ: the seat of sexual urges, thoughts, sensations,
inhibitions and behaviours.
A
number of reflexes including the sexual responses of erection, ejaculation,
and vaginal lubrication
are located in the spinal cord or brain stem. In evolutionary terms
these reactions are understood to be similar to the responses of our most primitive vertebrate ancestor.
The
brain also developed elaborate and complex higher cortical functions
located in the midbrain, limbic system and frontal area.
And thus sexuality is emotional, social and relational, about the self,
values, attitudes and beliefs as well as sexual functions. And these
factors can impinge on that primitive reflex response.
Therefore,
brain damage can impact directly upon sexual functioning. It can
also have indirect affects, as it impacts upon many other factors
(e.g. relationships, self-value, sense of self-attractiveness) which
influence sexual feelings, functioning and performance.
Secondary causes
Stress can cause problems for people’s sexual functioning. Stress
is a common reaction to TBI.
Depression
and anxiety have also be found to be very common after TBI and can
affect a person’s sexual life.
Medication used for various conditions after TBI may also
affect sexual functioning.
Chronic
pain is common after TBI and pain affects people’s enjoyment
of sex and feelings of sexuality.
Relationship
difficulties are common after TBI and
impacts on the couple’s
sex life.
Other
physical injuries apart from the TBI can also
affect the person’s
sex life.
Range of changes
Domain
Disability
Impact
on sexuality
Physical
Weakness or
paralysis on one side
Restricted movement in hands, arms or legs
Tremor, Chronic pain
Loss of sensation to touch
Bowel dysfunction
Bladder dysfunction
Fatigue
Difficulty
in transferring to and from bed
Clumsiness in love making
Some movements or positions can increase pain
Parts of the body may not be aroused in response to touch
Problems with applying contraceptives
Fear of accidents, anxiety, embarrassment. Inhibits sexual desire
and increases feeling of vulnerability and anxiety.
Fatigue interferes with the sexual desire and the physical ability
to initiate and sustain sexual activity.
Cognitive
Memory problems
Reduced concentration
Person with
brain injury forgets having sex
Person with brain injury gets distracted during sex
Forgets about contraception
Psychosocial
Sexual disinhibition,
lack of initiation
Non-injured
partner upset having to always initiate sex
Complaints made about person’s sexual disinhibition
Psychological
Depression,
increased anxiety, fatigue, loss of confidence, poor self image
Person with
brain injury looses interest in sex or too tense to enjoy sex
Non-injured partner frustrated or feels rejected
Thinking that an appliance interferes with participation in sexual
ability (eg catheter)
Sexual problems
Reduced sex
drive, increased sex drive, problems with erections, ejaculation
problems, vaginal dryness, orgasm problems
Cannot enjoy
sex in the same way as before the injury
Frequency of sex reduces or stop having sex
Become concerned about capacity to have children
Makes sex
unpleasant
Too embarrassed to ask for help
Social
Social isolation,
relationship breakdown
Partner may feel burdened with responsibility as carer
Dependency, institutionalisation
Feel lonely,
have trouble meeting people
End up visiting a sex worker to have sex
Lack of desire by lover related to difficulty separating carer role
from that of partner